We made it safely to Dallas this morning. Francesca and I are NOT morning people.
I have been trying to teach Francesca to say "uh-oh", but she says "ahhhhh-haaaa" instead. She said that a lot today as she stormed through the hospital in search of things to explore.
Here is the famous Dr. Fearon. He is amazing in his knowledge of kids with Aperts Syndrome. A lot of doctors actually cut off a finger digit because they don't know how to separate all the fingers, but Dr. Fearon always gets kids four fingers and a thumb.
This will be the last Francesca will be walking for about three weeks. She will have full leg casts and arm casts to protect her hands and feet. The surgery will be five hour with three surgeons working on her the whole time. They will have to take skin from her groin area for her fingers. Her last surgery was not too painful, but this one is not going to be fun.
Hotel dance party, toddler style.
Several people have asked me why Francesca's actually looks worse after her skull surgery. The doctor had to advance her forehead so that her brain would have room to grow. The front of her face is flat, so her forehead looks way out there. When she is much older she will have a mid-face surgery which will even things out.
Well, I gotta get to bed. We have to be at the hospital at 6 am! Thank you all for your thoughts and prayers!
Lots of prayers and best wishes coming your way. Your family is amazing. God knew what he was doing when he picked you as their mom. ;o) {{{HUGS}}}
ReplyDeletePraying that all goes smoothly and that she recovers nicely with very little pain!
ReplyDeletePraying everything goes great in the morning! I'm continually amazed at how great both the girls are doing. I have a neighbor who lost her little girl in September, and she is now donating special pillows to the kids at Children's Medical in honor of her daughter. I hope Francesca gets a special pillow after her surgery tomorrow. Please post if she does because it would make my friends heart sing. She just made a large donation of pillows a week ago. :)
ReplyDeletePRAYING AND PRAYING SOME MORE!! I KNOW THESE TRIP ARE AS HARD ON THE MAMA AS THEY ARE ON THE DARLINGS!!
ReplyDeletePraying and praying for sweet Francesca and you, her sweet mom! I just love you all so much even though we have never met! Praying for the doctors too, and all the precious ones you left behind. God bless you all!
ReplyDeleteYou and Francesca are in my thoughts and prayers and they are able to give Francesca something to dull the pain, and praying that she isn't TOO upset about the casts. *hugs* Stay strong!!
ReplyDeleteHang in there Momma!!! This will all be over soon and you'll both be dancin!! :) Praying for you and your little sweetie!! Love ya!!
ReplyDeleteHolding you in prayer, friend <3
ReplyDeleteFrancesca, you and your Mommy cannot know how much you are weighing on my heart and mind. I pray for the absolute guidance of God's hands on your surgeons hands. I hope Mommy finds peace and comfort in all the prayers and well wishes for y'all ~ while she waits. You are one tough little girl and I cannot WAIT to see how you bounce back...and I am sure you will. Always remember ~ YOU ARE BEAUTIFUL, INSIDE AND OUT...AND ALWAYS WILL BE!
ReplyDeleteSending love and prayers your & Mommy's way.