Another day, another doctor's appointment.
Look - Francesca has clothes on!!!
Isabella is such a good big sister!
This appointment was with a geneticist. She said she knew that Francesca has Aperts Syndrome, but she suggested that we still do an giant panel of expensive blood work just to have it officially confirmed. Uh, no thanks!
She also suggested that Victoria go see a neurologist. Apparently there are hundreds of different forms of Arthrogryposis, and many are genetic. She said the neurologist could do a muscle biopsy to confirm ONE type because Victoria will need to know this when she has kids. Having the biopspy won't change her treatment at all though. Considering she is only two, I think we can hold off on that for a little while!!!
My kids are the best. Look what they made me for lunch!
After dinner (a BIG thank you to Theresa for the Chinese food! I would never eat anything besides cereal without her!), we danced around the kitchen like wild women. Francesca was bobbing her head up and down and Victoria was twirling a cup, laughing hysterically.
Who knows what craziness we'll come up with tomorrow!
Beautiful post as always - so simple, so chaotic, so real.
ReplyDeleteLove ya much, friend!
Brooke
www.TheAnnessaFamily.blogspot.com
After the week you've had I could not agree more about your enthusiasm for the coming weekend! Next week has to be better right?!?!
ReplyDeletedont wrry if your kids wear clothes mine never do and are really happy and i love your blog/facebook it reminds us of our family your an awesome mom!!
ReplyDeleteclothes are completely overrated! I love the diaper look myself. Especially in the summer!
ReplyDeleteNice call on the Expensive blood work! And the biopsy. Like you said I think you got a little time to get that done.
Enjoy your weekend!
Your posts are so fun to read. I always look forward to them! And by the way, you have such beautiful children. They are all just stunning. :)
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